Leã³n, Guanajuato, Mexico

The Canadian Open Parkinson Network

Becoming a C-OPN participant involves completing online questionnaires and 1 in-person visit. There are 3 key components: 1) C-OPN Database * Answer questions about yourself and your lifestyle, medical history, family history, current medications, and other symptoms you may or may not experience. * This can be done either online, or over the phone or in-person with a C-OPN Coordinator. * Information is also gathered from cognitive testing (MoCA) and motor assessment (MDS-UPDRS), both of which are done during the 1 in-person visit with a C-OPN Coordinator at one of the C-OPN Sites listed above. * All information stored in the database is de-identified (meaning removal of any person information). 2) C-OPN Biobank * Participants can choose to donate a blood sample, which would be drawn during the 1 in-person visit with a C-OPN Coordinator at one of the C-OPN Sites listed above. * Blood samples are processed into DNA, serum, and peripheral blood mononuclear cells (PBMC), and stored in Montreal, Quebec. * All blood samples stored in the biobank are de-identified (meaning removal of any person information). 3) C-OPN Registry * Participants can choose to be part of the C-OPN Registry, in which they opt to receive e-mail notifications about upcoming research studies looking to recruit participants. We ask that participants enroll for a period of at least three years so that the C-OPN team can gather information on disease development and progression, as well as natural aging. Follow-up involves completing two questionnaires, either online or over the phone with the Site Coordinator, every 18 months. There is no in-person visit involved in the follow-up.