Clinical Care Consortium of Telomere-Associated Ailments (CCCTAA) Database

Last updated: July 12, 2022
Sponsor: National Cancer Institute (NCI)
Overall Status: Active - Recruiting

Phase

N/A

Condition

Telomere Related Diseases

Aplastic Anemia

Telomeres

Treatment

N/A

Clinical Study ID

NCT05436431
10000822
000822-C
  • All Genders

Study Summary

Study Description:

This protocol will be utilized for the creation and management of a repository of coded clinical data on patients with Telomere Biology Disorders (TBDs) submitted by researchers from CCCTAA member institutions.

Objective:

The primary objective of this study is to develop a shared database (repository) of coded clinical research data, managed by NCI, to facilitate collaborative research across CCCTAA member institutions.

Eligibility Criteria

Inclusion

  • INCLUSION CRITERIA: In order to be eligible to participate in this study, an individual must meet all of thefollowing criteria:
  • Diagnosed or being evaluated for a Telomere Biology Disorder (TBD) at a CCCTAA memberinstitution.
  • Male or female, from 0 to 100 years.

Exclusion

EXCLUSION CRITERIA: An individual who meets any of the following criteria will be excluded from participationin this study:

-Individuals who do not meet eligibility criteria. No other exclusionary criteria apply.

Study Design

Total Participants: 10000
Study Start date:
July 18, 2022
Estimated Completion Date:
December 31, 2037

Study Description

Study Description:

This protocol will be utilized for the creation and management of a repository of coded clinical data on patients with Telomere Biology Disorders (TBDs) submitted by researchers from CCCTAA member institutions.

Objective:

The primary objective of this study is to develop a shared database (repository) of coded clinical research data, managed by NCI, to facilitate collaborative research across CCCTAA member institutions.

Connect with a study center

  • NIH National Cancer Institute - Shady Grove

    Rockville, Maryland 20850
    United States

    Active - Recruiting

Not the study for you?

Let us help you find the best match. Sign up as a volunteer and receive email notifications when clinical trials are posted in the medical category of interest to you.